But we don’t like to see any red on the screen of Kaily’s ventilator. We sit and watch loops that illustrate Kaily’s breathing. Half of the loop represents the breath in and the other half represents the breath out. The breath in shows up as either red or yellow, and the exhale is always blue. If the top of the loop is red that means the ventilator is breathing for her. If the upper part of the loop is yellow that means she is breathing by herself. For the last week we have seen nothing but red. She hasn’t been doing any of the work because she has been so sick. They call this “riding the vent”. Today we have seen more yellow than we have for a while. She is still primarily relying on the ventilator for her breathing, but she is beginning to have her ventilator settings lowered some, not a whole lot, but some. We can’t wait until all we see is maize and blue!
Kaily is doing slightly better than she was yesterday. A positive step, however small it may be, is really encouraging. We seem to be turning the corner on the infection. She is still really puffy, and she will be until the infection fully clears, but they expect her to do some good shrinking throughout the week. We should give her some credit here…she did lose some weight over the last 24 hours. She went from 1.82 kg to 1.81 kg. That means she has dropped just below 4 lbs. Keep up the good work, little girl.
Thanks for your prayers and concerns; it means so much! Keep fighting, Kaily, keep fighting!
We may be buckeyes over here:) but we’re praying for maize and blue too! We’re hanging in there with you! Hold on tight Kaily…keep workin’!!! We love you!
Wow, what an amazing family. My thoughts are with you all and hope that Kaily keeps getting stronger every day.
Sending hugs to you all xxx
Hi, I am in Kristas core group at CBS. My name is Kim. I shared with her the thoughts below after hearing of your premie. I will keep you in my prayers.
Krista, I am the parent of a 34 week premie, I was rear-ended and my son was born emergency c-section we spent 3 weeks in the sjmh nicu. He is now 4. And quite a character!
Please share with your friend to rest and to lean on friends and family. Breastmilk is liquid gold, drink non-caffeine even when not thirsty. Keeping up brestmilk supply may not sem like much, but it’s the most important thing she can do besides prayer.
28 weeks is good, it is a journey. Please give her my e-mail if you like, if you find it helpful.
The Nicu can do wonders by God’s grace. Please also share with her to ask questions no matter how small they seem or if she has asked it already. And to let the nicu know whatever support she needs, transportation, anything they will put her in touch with the needed resources.
Praying for you!!
My Mom (RoseMary Hancock Kelly) taught your brother Nathan in elementary school. Awhile back she forwarded your blog to me. I’ve read it regularly, often with tears in my eyes – our prayers are with your little girl – it’s so hard to see what the Lord has in this, but we are praying that this all will make Kaily a really strong little person to be used by Him.
Please know that all the Moles family is praying for you. I am now a blog adict and love keeping up with you guys here. I click on your name regularly, praying for good news. Glad to see some today. Will pray for even more good news tomorrow!